23 Signs You Grew Up With Ehlers-Danlos Syndrome: Check All Signs

Ehlers-Danlos Syndrome (EDS) is a group of rare genetic disorders that affect the connective tissues in the body. Growing up with EDS can present a unique set of challenges and experiences. Here are 23 signs you grew up with Ehlers-Danlos Syndrome without knowing about them:

1. Hypermobile Joints: Constantly having joints that are more flexible and prone to dislocation than others.
2. Chronic Pain: Experiencing chronic joint and muscle pain from a young age.
3. Easy Bruising: Frequently bruising easily due to fragile blood vessels.
4. Frequent Dislocations: Suffering frequent joint dislocations or subluxations.
5. Soft, Velvety Skin: Having soft, hyperelastic skin that is prone to tearing or scarring.
6. Joint Clicking: Audible clicking or popping sounds when you move your joints.
7. Fatigue: Experiencing extreme fatigue, often due to pain and sleep disturbances.
8. Digestive Issues: Struggling with gastrointestinal problems like irritable bowel syndrome.
9. Orthostatic Intolerance: Feeling lightheaded or faint when standing up too quickly due to blood pressure regulation issues.
10. Delayed Wound Healing: Wounds taking longer to heal than usual.
11. Fragile Blood Vessels: Developing spider veins and varicose veins at a young age.
12. Scoliosis: Developing an abnormal curvature of the spine.
13. Mitral Valve Prolapse: Experiencing heart issues like mitral valve prolapse.
14. Dental Problems: Suffering from dental issues, including gum disease and loose teeth.
15. Stretch Marks: Developing stretch marks easily, even without significant weight changes.
16. Joint Hypermobility Complications: Experiencing complications like arthritis due to joint hypermobility.
17. Bruising from Minor Trauma: Developing bruises from minor bumps or pressure.
18. Frequent Sprains: Frequently spraining or straining ligaments and tendons.
19. Poor Scar Formation: Having scars that heal poorly and are often raised or stretched.
20. Recurrent Infections: Prone to recurrent infections due to compromised immune function.
21. Delayed Milestones: Achieving developmental milestones, like walking, at a later age.
22. Vision Problems: Developing vision issues like myopia and astigmatism.
23. Chronic Headaches: Suffering from frequent headaches, including migraines.

Growing up with EDS can be challenging, as it often involves managing pain, frequent medical appointments, and adapting to limitations. However, with proper medical care, physical therapy, and support, individuals with EDS can lead fulfilling lives. It’s essential to work closely with healthcare professionals who are knowledgeable about EDS to manage symptoms and improve quality of life.