Navigating Life with Ehlers-Danlos Syndrome: 23 Childhood Indicators

Ehlers-Danlos Syndrome (EDS) is a group of genetic disorders that affect the connective tissues in the body. It can manifest in various ways and often presents with a wide range of symptoms. For individuals who grew up with EDS, there are certain signs and indicators that may have been present during childhood. These signs can provide early clues to the presence of EDS and help in early diagnosis and management. Here are 23 signs you grew up with ehlers-danlos syndrome:

1. Joint Hypermobility: The most common sign of EDS is joint hypermobility. This means that your joints are more flexible than normal, and you may be able to bend them beyond their typical range of motion.
2. Frequent Joint Dislocations: If you experienced frequent joint dislocations, especially in the absence of trauma or injury, it could be an indication of EDS.
3. Easy Bruising: EDS can cause fragile blood vessels, leading to easy bruising even from minor injuries or bumps.
4. Stretchy Skin: Some individuals with EDS have stretchy or elastic skin that can be easily pulled away from the body.
5. Delayed Wound Healing: Wounds and cuts may take longer than usual to heal, and scars may be more prominent.
6. Chronic Pain: Many individuals with EDS experience chronic pain, often in the joints and muscles.
7. Fatigue: Feeling tired and lacking energy is a common symptom of EDS.
8. Flat Feet: If you have flat feet, where the arch of your foot is minimal or absent, it may be a sign of EDS.
9. Poor Coordination: EDS can affect coordination and balance, leading to clumsiness or difficulty with activities that require fine motor skills.
10. Scoliosis: Some individuals with EDS develop an abnormal curvature of the spine known as scoliosis.
11. Dental Problems: EDS can impact the structure of teeth, leading to issues such as overcrowding, misalignment, or dental abnormalities.
12. Fragile Skin: The skin of individuals with EDS may be fragile and prone to tearing or splitting.
13. Eye Problems: EDS can affect the structure and function of the eyes, leading to issues such as nearsightedness, astigmatism, or early-onset cataracts.
14. Gastrointestinal Issues: EDS can affect the digestive system, leading to problems such as reflux, constipation, or irritable bowel syndrome.
15. Heart Problems: Some forms of EDS can affect the structure and function of the heart, leading to conditions such as mitral valve prolapse or aortic root dilation.
16. Easy Scarring: Even minor injuries or scratches may result in excessive scarring.